Update on Paige: Our Journey with Lyme Disease

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong. 2 Corinthians 12:9-10

I think this is my Bible verse for the year. I need to print it up on pretty paper and put it all around my house, in my car and in my wallet. I need to be reminded daily, if not hourly, that the Lord IS my strength and when I feel weak, HE will make me strong.

As we drove home from Northern California this weekend I had this internal struggle. One side was the strong momma bear, I WILL fight for my daughter, I WILL get her well, I WILL do whatever it takes, I WILL devout my whole self to doing what is necessary. Then the other side would take over; HOW can I do this? I am NOT strong enough for this long road, I am NOT smart enough to make these decisions that need made, I am NOT as tough as Paige, WHY did God make me her mother? Am I enough for her?

This inner struggle continued into my sleep and was still there when I woke up. And as I read the summary of our visit that was sent over from the doctor this morning and I pondered what we had heard this weekend, the tears started to fall. I KNOW I am not enough, I KNOW I am not strong enough for this, but I serve a God who IS. And I KNOW He loves my daughter far greater than  I do and that He will make me strong, and Jim strong, and Paige strong and we WILL get through this.

Be strong and courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave you or forsake you.”
Deuteronomy 31:6

We met with Paige’s homeopathic doctor on Saturday. We were with her for over 2 1/2 hours and she ran several tests and evaluations on Paige. She did an extensive neurological exam as well as tested different organs and systems in Paige’s body. She also did several nutritional exams to check levels of essential minerals and vitamins in Paige’s system. The results were not so good. We learned that Paige has significant diminished use/control of her right side (which we have noticed but didn’t realize the severity). This includes her extremities, hearing and vision. She also has several organs that are not working how they should to promote the healing that is necessary. Her liver, gall bladder and thyroid are under severe stress, as are her adrenals. Her body also isn’t absorbing essential vitamins and minerals. She is severely deficient in zinc, iodine, iron, calcium, vitamin B, vitamin D and protein. We are assuming since Lyme is an autoimmune disorder that her gut is also under undue stress and just can’t absorb these crucial elements.

Our first instinct is to just add all of these supplements to her already long list of meds, but we can’t really do that. We don’t want to throw her body into an autoimmune response that can cause more harm than good. We also aren’t sure if the supplements will be absorbed any better than the food she is eating. So we need to really work on healing her gut and hope that helps her body absorb what it needs.

We have known based on her episodes and her symptoms that the Lyme is effecting Paige’s neurological system the worst, and the tests and evaluations that Dr. Barton did prove this. Paige is already on a supplement for neurological support and we are to also start therapeutic exercises with Paige that are to be done several times a day. We need to stimulate her brain, ears and eyes and work on strengthening her right side.

Dr. Barton has also provided us with a list of labs that she would like done as soon as we can. She would like an extensive thyroid panel, Vitamin D complex, Iron panel and a few others. These can be done at a lab near us and the results will be sent to Dr. Barton. She would also like to do some further Lyme tests to see if Paige has any other co-infections. These however will have to wait a little while since they are nearly $2,000. In addition to the lab tests Dr. Barton gave us several tests that we can do at home which we will be doing this week and forwarding the results to her.

Until these labs are done and analyzed, we are not changing Paige’s protocol as far as medicine and supplements. We will be starting the therapeutic exercises as suggested as well as a couple of other therapies outside our home though.

We also will be contacting several Lyme Literate Doctors that have been referred to us by people we know and some by Dr. Barton. We all feel that having another doctor on board, and one a little closer will be a big benefit to Paige. We are hoping that we can find one that is taking new patients and is willing to see Paige.

We discussed for some length the future of Paige with Dr. Barton. And she feels, while her symptoms are somewhat advanced, the Lyme is not. We have caught is relatively quickly and are treating it somewhat aggressively. She feels the healing process can take quite some times, even a couple of years, but once we get her healed that she should live a healthy and productive life. However, we all know that Lyme is not cured, it only goes into remission; so there is always the possibility of it rearing its ugly head if she gets really sick, has hormone changes or other major changes to the body. This is why we feel having a local doctor on board is a good idea. She will have someone close to help keep her ‘well’ and the Lyme in remission. While the rest of the visit was hard to hear, realizing that our daughter is sicker then we even realized, hearing that she can still pursue her dreams and aspirations of being a cop one day was a HUGE weight off of our shoulders.

Where does all of this leave us? Good question. For now we continue on the current protocol, we add in the exercises, we get the detox treatments, we do the cranial massages, we continue on the gluten, dairy and sugar-free diet and we continue to get her to exercise, even if for just a few minutes a day. Since Lyme is ever-changing, this protocol can change at any time, but for now this is our game plan.

If anything changes, of course we will let y’all know. When we get appointments with other doctors we will update on that as well. We appreciate all the prayers, messages, cards, donations, checks and support. We feel that like could not be doing this without our HUGE support system.

Be strong and courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave you or forsake you.”
Isaiah 43:2

Here are a few specific prayer requests:
1. that we can find something to curb her migraines
2. that she will continue to tolerate the detoxing without severe side effects
3. that Paige will continue to keep her spunk and sense of humor through all of this.
4. for the Lord to provide a way to get all of the labs done (nearly $3.000 for all of them including the Lyme testing)
5. for continued strength for the whole family; so that we can support Paige and be her rock through this all
6. that the upcoming auction we will be doing will be successful

Ways to help:
Amazon with list: https://www.amazon.com/gp/registry/wishlist/NBWU7WSHPLCZ/ref=cm_wl_sortbar_o_page_2?ie=UTF8&page=2
PayPal: Priderecon@aol.com

20170211_161249
The flooding in Northern California was devesting. We saw pictures like this everywhere. 
20170212_090259
We stayed overnight with Jim’s cousin and his family. This was the view from their deck. I didn’t want to leave!!!
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Paige and Amy at lunch, they were instant friends

 

 

#wesupportPaige
#fitVBfamily
#lymesucks
#wefighton
#weWILLbeatLyme

One thought on “Update on Paige: Our Journey with Lyme Disease

  1. Jennifer, I am so thankful God has led you to an answer and to a healing path. The best natural “remedy” for migraines that works for me is FRESH PINEAPPLES. Just a couple of slices usually will end the migraine/headache. It also works for cluster and tension headaches! Paige and the entire VB family are in my prayers. Keep focused on Him and He will guide you. Love y’all, Shannon

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